Hello Peace,
I'm new at all this, my mom is the patient and I will be her caregiver....I do understand the feeling of frustration having one doc seem like they are not happy with you responding to another doc... My mom, Rose, hasn't had surgery yet, she is scheduled for Tues, the 15th. Already she is saying everything you wrote above...it's heartbreaking and frustrating and to me it seems like the patient has no control, all you want is for it to be over and healed. I just wanted you to know that I will pray for you. I hope that you find peace.
Donna


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.