I'm 14 months post-nuke and my taste is still not back to any large degree.

At first, everything was too salty or it was metallic; both of those have gone away, but I still don't really taste sweets (a neighbor gave me a splendid piece of super-fancy bakery cake with sweets, some kind of fruit syrup, nuts, etc., and I could hardly taste any of it except the fruit!) although I can taste chocolate (but the darn stuf is too dry).

When I do taste something, the taste will only last a few bites and then I seem to tune it out.

Looking on the positive side, not having much taste means I don't have much appettite, so it's pretty easy to maintain my weight!

I guess my summary is that one should expect the recovery to be different in each individual's case with the common thread that it will be most likely a very slow process; getting frustrated with the lack of progress is kind of pointless...


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.