 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | To all,
I am tooooo new to step in the middle here and I appreciate the education on how to effectively use this site which I will now routinely do a search before I post BUT I will still post unless the search reveals a post that is very current. I, like all of us, hope that new treatments and products are being offered every day. The benefit of reaching 100's with the same or close dx and hearing what their team recommended currently is more valuable (to me) than what was offered and tried 1 year ago. It may be the same but it's worth the effort to confirm.
It also helps my psychic to have the responder wish me well or tell me to hang in there. To me, the psychological part is 50% of the battle to win this war we are thrown into without our permission. The reason I come here is to talk to real people, real time about my real problems.
To the old timers, we newbie's appreciate you passing along your learned wisdom, whether you learn it from experience or from this Board. Hopefully we will carry the torch if you no longer participate. If you continue, as we and future newbie's would prefer, you will always be a valuable source of information.
IMVHO,
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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