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#40048 05-28-2006 01:25 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,219 | Hi Rim,
I can address some of your issues as it appears that you and I had similar surgeries.
I had no idea that surgery like this could knock the wind out of me as much as it did. I, too, had and still have numbness in my cheek and neck from my ear to my mid neck. This has not gone away and I don't expect it to. I can certainly "live" with this.
As far as the rest is concerned, you did have major surgery and it causes pain for quite some time. As you were told above, you should be getting the right meds from someone. Seems like your surgeon is not the right one for that. If the pain you're experiencing is just post-op pain, then it will soon start getting better. But, we are not treating doctors here, and if the right pain meds don't work, then someone needs to check and find out what is going on.
The fatigue will take a long time to go away. This is very normal. It took me longer to get back to the computer than you. Once you are feeling better you will need physical therapy for your shoulder. This will help you get your full range of motion back. If your speech has been impaired, as mine was, you will also need speech therapy.
PS You should never continue taking a drug that causes itching and a rash. Allergic reactions can have very serious side effects.
Good luck in finding a doc that will help you with your pain management and follow-up treatment.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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