Thanks Gary for the details about the Aranesp. I briefly searched but couldn't find anything about it.

I think the whole thing is starting to get to its limit for my husband. The frustration of not being normal. We have talked this evening and things are better somewhat but he is still discouraged, trying to make plans for things and getting upset when I say "wait and see how you feel." I think that is what is bothering him most. I tell him "one day at a time," and that is hard for him to take sometimes. I am just afraid for him to make plans and then be disappointed.
Thanks everyone for the input.
Michele