Hi JillandDad,

Going back to your original question, with such a serious prognosis it would probably be a good idea for your peace of mind to get a second opinion and the CCCs you mention would all be possibilities.

There are a number of clinical trials available for those who have failed primary treatment -- several for advanced and recurrent oral tumors are available at Hopkins and Sloan, for example, which are using new drugs. Both hospitals have web sites where you can get contact information -- when we went to make consult appointments at these two centers after my husband was diagnosed, they were able to see him in days. They will want copies of medical records and any pathology samples, scans etc. as well as a synopsis of his treatment to date.

It well may be that a second assessment will present the same options (and prognosis) but it will help eliminate the fear that you did not do everything possible.

Best of luck,
Gail