My husband Erik is on Erbitux right now. He has received three treatments of it, along with Carboplatnum- (I hope thats right) This drug was still in study when Erik first started, and within the last three weeks, it has become FDA approved. The reactions to Erbitux can vary. So far Erik got a severe case of acne(like) rash all over his face and head. It was very sore, and he was put on some heavy pain meds. After two weeks on it, he had a treatment suspended because his face started to swell, and the radiation mask wouldnt fit. But as horrible as it might sound, the benefits outweigh the side-effects. This drug will cut re-occurance in half. (according to studies) Our doc decided to take the dose down some (it is based on height and weight- Erik is 6'4" and started at 300 pounds) so he was getting a whopping dose. Now he is recieving 75% of the recommended dose, and doesnt seem to be having all the side effects. Our doc really felt that some Erbitux was better than none. I will say that when the rash starts, a cool cloth helps. I kept one in the fridge and kept rotating. Plus the sores tend to ooze so I suggest a dark pillowcase, even a silk one is more comfortable. We also shaved Eriks hair down close to his head, so that the hair didnt pull on the sores. Our doctor started him on some aloe gel (without alcohol) but you should make sure its okay first.
The second week is the worst on Erbitux, then the body seems to adjust some, and the soreness seems better.
Hope this helps
Jennie


Type and stage of cancer:1st - SCC left base of oral tongue non HPV, T3N1M0 hemi-glossectomy 60 node rem, radX35 carboplatnum &Erbitux X6, Peg tube, lost 55 lbs
2nd - SCC right base oral tongue, surgery, Cisplatin & Erbitux x 16
3rd - SCC right base oral tongue, surgery, hope.