Bee and all - It is often helpful to see if your insurance carrier has a nursing support program in place that can assist in handling the deluge of information and navigating insurance issues. Investigate this opportunity by simply calling to your insurers member or customer service. Ask that representative to be transferred to case management or care management.

If your employer is self-insured than call to human resources and ask if they have a disease management program in place. This works for almost all serious diagnoses as disease management and case/care management programs have been rapidly expanding as sponsored by employers or insurance carriers.

These services can really help with the footwork and information gathering processes. I know from companies that I have run that we ALWAYS had our nursing staff connect patients with oral cancers to OCF and other fabulous cancer support programs as part of their overall program of self care.