 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Mike,
I am so sorry for the pain you are experiencing right now with Dinah's passing. She was truly a wonderful person and so generous with her time and compassion for others. The magic she worked to get all the Vegas planning underway was so appreciated. I know the road you both traveled has been a rough one and you both are real warriors in your battles with this horrible disease.
I am praying for God to deliver Dinah into His arms and to provide you with comfort and peace. My deepest sympathies to you.
With Love,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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