Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jen,
Anything with Guaifenesin like Humibid or Robitussin would help thin the stuff out, along with lots of water. Even a little pediolyte in the tube would replenish some of the electrolytes with all the vomitting. Make sure you are getting lots of regular (2-3 times per week) bloodwork to keep your electrolytes balanced. Sodium and potassium issues at this stage could be fatal. The goo will last for at least 2-3 more weeks. Unfortunately, I am not the one to recommend anything for the vomitting as I spent most of my time crawling from the bed to the bathroom. It got so bad that I was screaming from the acid burning my throat for many days. I tried about every drug known to man and nothing worked very well. I could not use the PEG because about 15 minutes after anything went in, it came right back out.
Keep spitting the gunk out and soon it will get better. Just imagine Crystal Gayle singing in the background, "Don't it make your brown goo clear!" Once it starts getting thinner and clear, it will get better. I had to switch over to IV feeding (TPN) about where you are at now and for many weeks. I also had 2-3 bags of fluids through my port almost every day.
I am glad your treatment is winding down. You have reached a very important milestone. I have thought of you a lot lately and hope you are doing as well as you can right now.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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