 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hi Ron,
Welcome to the neighborhood. It was good to hear you have gone so long without cancer issues looming. I am sorry you have to deal with this again, though. If your doctors are suggesting radiation, is there anything that would cause you to believe you should not have it? The reason for the treatment is to rid you of cancer. Without it, you probably would be overtaken by the disease. Is this worth a gamble?
The radiation is tough but many of us have traveled the road ahead of you. It is doable and certainly worth it in the long run.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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