Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I think the only time I had a real problem was when I walked into the radiation center with a bucket in my hand catching the you know what. I suddenly felt a big problem developing at the other end and one of the employees went into the bathroom ahead of me. After pacing the floor for what seemed like hours (seconds really), I bolted for the women's bathroom and as I hit the commode, I didn't know if I was coming or going. That was the worst day I remember and as I walked out of the bathroom the social worker was blocking me from sitting down while she asked if there was anything I needed. I finally staggered around her just in the time for the dietician to tell me I wasn't getting enough to eat.
Ahhhh...yes, I remember it well!
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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