Eileen that is wonderful! Did Bob have any surgery? Don is just BARELY eating one 6oz cup of yogert per day. No water, no nothing. He coughs after every bite. Actually part of his therapy is to "clear his throat" twice after each swallow. Then he coughs a lot for about an hour after too. He hates coughing.. he's getting so discouraged. He and 2 of his buddies had tickets for one day at the masters golf tournament in Wisconsin next week. To watch Tiger Woods and all the others in our home state! They got the tickets way last fall... before we knew..He canceled on them today. No way he says, he can't stand out there for 10 hours. How could he eat? The guys will be going out to eat (and drink) He can't hardly hang a bag in a tree. Two hours from home, he'd have to stay in a motel and it's just too much to juggle. This is just breaking my heart and I don't know what to do anymore. He use to walk 18 holes pulling his clubs, now he rides for 9 and is exausted. He gets dry, but he buys everyone else a drink off the beverage cart and tips the service. That's just how he is. I do everything I can for him but I can't even buy him a damn drink. I have to find something that works for him, wherever that might be. I worry that he's not getting enough calories for his usual active lifestyle. He has 9 cans of 237 calorie Protain XL per day. That's barely over 2100 calories per day. He use to be a "bit" overweight at 204,(beer belly - gone with the beer) now has been within 5 lbs of 167 since surgery in April. He weights in every day and on golf days he can be 2 - 3 lbs lighter. Then he's wiped out for a day and gains a little back. He spends most of his day in the recliner. Do I let him rest or push him? He's only 5'8" but I wonder if he's getting enough nutrition, but he gets upset when I mention having any more because he doesn't want to be attached to the bag anymore than he ABSOLUTLY has to.(Who can blame him) I once learned that it takes 2500 calories to support 150 lbs. So I don't know what their doing but it sure seems like they're shorting him. Is Bob on a PEG also? It's awesome that insurance is covering it for you. It's about $170 per treatment I hear. Don's should if the Dr. refers him for it but I fear that might be a roadblock. What if the Dr. doesn't? Sometimes, (a lot) when you suggest something, they blow it off.. of coarse because THEY have the education, right? And they seem threatened somehow. DUMB. Well I've done my venting for the night. Sorry for rambling. Thanks again for any info and suggestions you can provide. Thank You so much,
Karen


Caretaker/Longtime Girlfriend of Don. Dx 10/31/03 SCC Stage IV T2N3bMO right tonsil/tongue base. 35 IMRT w/8 Chemos,Biopsy 4/5/4 STILL pos. Radical rightside 4/12/4 Reoccurred late August 04 God took his hand from me November 23rd, 2004