 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Miss Vicki,
I am curious, was this your first PET/CT scan or have you had others before?
I did not have surgery but had a very difficult time opening my mouth wide for quite a while after radiation even. It is something I work on daily still and it is especially tight in the morning. I use an occlusal guard on the bottom teeth every night since radiaiton because I clench my teeth. I used to before the radiation but much more since. I consciously keep my teeth slightly open during the day or I clench them all the time.
Hang in there, you are an amazing Lady! I am praying for peace, for comfort and for healing for you! Try to not worry about what the biopsies might be but remember, it aint cancer till they say it is!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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