All of the things you all have described I have had to some extent. The head turning mobility has continued to improve even two years plus after treatment. Also is seems like a little fatty tissue is now present under the skin of my neck which makes it feel less hard.

I found that the stiffness can be aggrevated by both stress and too much stretching! The muscles tendons and scar tissues seem to get ticked off if I stretch too much and they rebel by getting tighter. I have taken Diazepam on these occasions and 5mg is required to have an effect (you don't want to drive for a few hours).

As for the aches and jaw pain, I have had episodes with that as well. Every time there is pain I wonder....Doc says it is all normal....strangely the pains are more common the few weeks before Dr. visits. I have concluded that mental stress definately makes things worse.

Massage helps but only very gentle massage in the surgery/rad area. Lymph can be made to move by gentle repeated finger tip strokes toward the area that has no scarring. Seek trained specialists in lymph edema (some Physical Therapists have had this training)

Certain things touching the scar area now feel like an electric shock. This is a change that has recently happened. The bottom line is you can expect things to be changing and feel different for quite some time.


Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.