Hi Mandi,
Thanks for asking about Heather. So far, we can't tell if the chemo is working or not. She had to postpone the 2nd treatment of the new protocol because her white cell count was too low, but it is up now, so she will be having the chemo today or tomorrow.
They have been giving her steroids to help keep the severe swelling down. So she does feel a little better. Other than the white cell count being down, all her other vitals are good. Her lungs are clear and her heart is strong, so we don't have any worries there. It is just a waiting game to see if she responds to the chemo.
Whether or not she responds, I'm hoping to take her home within a week or 2. She has been in the hospital a month now. Her sister and I can do almost everything the nurses do anyway. About the only things we don't do are give her injections and change the medicine bags on the pumps. With the help of visiting nurses, I am sure we can care for her just as well at home.
My wish for everyone is that you and your loved ones continue to improve and no one ever gets to the point that Heather is. This is just the most horrible disease. It leaves you with no dignity at all. But we do continue to hope for that miracle. As they say, it's not over til the fat lady sings and I don't hear any music yet!
Rainbows & hugs,
Rosie