Brian and Rosie,

Thanks for the additional info...it does make me wonder when not a single nurse on the oncology floor of the hospital, nor any of the VNA nurses that have visited in the past couple weeks have a clue about the PEG feeding bags...at least the visiting nurse that came today knew a bit more about them...she also suggested we request a referral to a gastroenterologist about the weird popping thing that Jim's tube is doing. She also said we should ask our doc about something called TPN (total parenteral nutrition?) for Jim since he is still not getting enough nutrition or calories and has lost about 17 lbs so far (since January, is that a lot?) He has probably lost 12 of that in the last three weeks. I will check with the local medical supply pharmacy about the bags...wish me luck.

Jan

p.s. positive note: Jim is feeling quite a bit better today.


Jan

Wife of Jim-SCC, Base of Tongue Cancer Stage 3 or 4 (depending on who you ask) Diagnosed November 2002, 4 rounds of chemo, 43 radiation treatments...21 years post-treatment and still ticking.