Hi,
Thanks Joanne and Kareng for your encouraging replies - will persue tube removal this week - can't wait to do exercises again, for my abs and complaining back!It'll be good to start proper physical rehab and to get back to pre-treatment fitness although can't see it happening overnight!
Does anyone have any advice on post treatment follow-ups? So far I've had a CT scan 3 months after treatment finished (max radiation to both sides neck and 2 rounds of Carboplatin/5FU's) and a second scan 1 month later which showed no change but still "suspicious" area low down left neck. My radiologist wants to wait now until October at least - does a 3 month interval sound about right? I'm so worried that they might not catch a recurrence/spread soon enough to treat but from what she implies, there's nothing more they can do anyway - maxed out on rad and chemo. Huh, guess it's just one day at a time but i want to hear that i'm in remission. How can they tell?
Is it just a case of wait and see or is there something more concrete to go by?
Don't know if this makes any sense but i'll post it anyway!
Thanks for listening,
Frances