Kim,
What a great post! You did a good job of making some sense out of some confusing issues.

I'm currently struggling with that "peace of mind" issue considering spread. My husband had CT of neck and chest in December (clean) as well as a full-body PET (clean). Right after that, they did the neck dissection and found the tumor in his tonsil. The pathology also discovered involvement of one additional node, besides the one that was removed and biopsied early on. So that leaves me wondering if the PET scan was worth anything, as far as determining other areas of the body that could be involved. I guess I'm really going through these worries right now because he seems so weak still, almost 5 weeks post radiation and chemo. He is also having a tough time putting on any weight, even though he is getting lots of calories via a PEG tube.

I know this is kind of a neurotic rant, but let me know if you have any thoughts.

Thanks,
Anita