Danny..........Good news about your ability to eat a few things. How is the food tasting? I think as you become more confident about your eating ability you will just gradually lesson the amount of food you take through the PEG. I really didn't wean myself from the tube so to speak, but gradually, I just was able to get the nutrients I needed orally without using the tube. You'll know when you're ready to get rid of the tube. Anyway, I did. I probably kept in in longer than I need to, but keeping it didn't hurt anything either. I am so happy you're finally eating real food. Isn't it fun? I know after not eating anything orally for almost six months, that first taste of food was heaven! ENJOY!
Sincerely, Donna
SCC first time 1989, with a diagnoses of 'cancer in situ' removed lesion, no other treatments. SCC recurrence 1997 of tongue and floor of the mouth. Stage III /IV Hemmiglossectomy (removed over 60% of tongue/ floor of the mouth), free flap, modified neck, RAD and Chemo(cisplatin, 5fu) simutainously. Cancer free 6, yes, six, years!
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