"Above & Beyond" Member (300+ posts) Joined: Apr 2006 Posts: 378 | Rough stage when they don't want the help but really need it. If you're using the food processor you could put benefiber powder in the food - it's tasteless. As for the pain, I don't need to tell you how important it is to get on a regular schedule and I had the same problem with Jack. I took him to a pain management specialist and let them be the messenger and he went on the fentenyl patch. It was much better to have long acting versus short acting, he was less out of it and his pain was controlled. Also the dose can be titrated up as needed.
What's his relationship with the hospice nurse or the doctor? Any support you can get there? Pick your battles but it is appropriate to try the we're a team doing this together and it's important to me that we're able to talk about how we feel and I find it hard to know that your symptoms could be better controlled because I love you ...or something like that. It's not blaming him just stating how you feel. Use I statements if you're going to talk to him. I'm sure he is frustrated but quality of life involved the whole family. Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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