Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | I took mine with me as a "show and tell" when I made my presentation to the Florida House. You should have seen the stares I got; the questions I got. Believe me when I told them how we are BOLTED DOWN to the rad table soooooo tight it leaves impressions in our face, it made the point that I wanted. I remember looking up at one point and catching the eye of a female House Representative and I will never forget the look of horror on her face.
Anyway may mask and I had quite a day. We left the house at 5am and returned at 10pm. On the way up to Tallahassee I just carried him in the open and I was stopped by about every 3rd person. "What's that?" ... "What do you do with that?" I tried putting him in the overhead bin on the plane and he wouldn't fit. They also didn't allow me to keep him with me at my seat so he got to ride special in the first class coat closet. On the plane ride back I bagged him up. I was just to tired to explain anymore. He has a special place in a spare bedroom and I can tell everytime I walk by that he's anxious to travel again.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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