| Senior Member (100+ posts) Joined: Oct 2005 Posts: 126 | As others have said the rate at which CT scans are done varies with doctors' philosophies. In our case the Radiation Oncologist (RO) is absolutely opposed to doing scans, our ENT is indifferent and our Medical Oncologist (MO) demands them about every four to six months or so.
So far from end of treatments in July 05, two sets of scans have been done the fist in Nov 05 and the second in May 06.
For the first one we were told by the MO and two other doctors that the cancer had returned. We were shocked. Than we had our ENT and RO look at the scans and they assured us that there was no tumor or recurrence. The RO was very upset that the scans had been done in the first place.
RO went further to say that radiologists who read the scans sometines put the most pessimistic results in the report and this is for liability reasons. In essence this is a CYA tactic that protects themselves from lawsuits. In the RO words is hen left to the RO and/or the ENT to clean up the mess in the sense of reading scans and reassuring patients that all is normal after they been told that the cancer is back. In this case the RO had the scan report redone.
For the second set of scans we got the results today. The MO said that they were negative with respect to lymph nodes enlargement or nodules but the scans showed a tiny amount of fluid around the heart. Now we are worried about this. The MO could not tell us conclusively what was the cause of this fluid around the heart. I wonder what the RO will say when we see him next.
CG to wife; Jan 2005 DX SCC Tongue T2N1MO; RND surgery Mar 2005; 35 XRT and 4 cisplatin completed Jul 2005. Dec 2006 tongue surgery, Scar tissue no cancer. Feb 2010 neck node FNA - negative. 2010 ORN right jaw plus fracture 2015 ORN left jaw plus fracture Feb 2016 Lower jaw reconstruction by Fibula free flap+titanium plate - Permanent G-tube June 2016 Difficulty breathing - Permanent Trachea tube Dec 2019 DX Cervical cancer - Stage 1 - Surgery Jan 16 2020. 15-20 esophagus/larynx dilations
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