Erik,

I know, I have the same problem, and I too alternate between feeling like this is absolutely horrible and feeling guilty about not being glad that I am better than i was.

But, hey, you can kiss your wife? There was a period when I thought I would never be able to kiss again. OK, it still isn't what it used to be, but I had a visit from my grandson today, and I could kiss him again (he is four, so I kiss and hug him all I can, you never know how soon he'll be too macho for that).

The Biotene products work well for me, but I do have to get up in the night and rinse my mouth and reapply the gel, then I can sleep another 3 hours. Sometimes I get to sleep 6 hours at a strech, it's great, but then my mouth is really disgusting - well, you know.

The mucous problem almost went away for awhile and now it's back again, although much less than two months ago when I went through a box of Puffs a day, and nobody would have wanted to kiss me then.

Yeah, life's OK, but I remember what it was like when it was GREAT - and did we appreciate it then?? Maybe sometimes.


All the best,
Leena


scc right tonsil T1N1M0, right tonsillectomy + modified neck dissection 3/04, radiation IMRT both sides X33 ended 6/04.
Also had renal cell carcinoma, left kidney removed 11/04