Hey, Miss Vicki,
Scott had the very same sleeping (or not sleeping) issues. It was all so frustrating for him. He would nod off while trying to concentrate on a movie or a book, but when he went to bed, he had to try to sleep propped up on several pillows or the trache would start clogging or he would get a ticklish, annoying cough. He would be awake off and on all night and then be exhausted all the next day.
We tried several medications to help him sleep.
One drug that was VERY effective was something called Clonazepam (a.k.a. Klonopin). The first night I crushed one and put it in his peg and he slept like a baby all night. (It only took 45 minutes for it to take effect.) Sometimes he would try to sleep without it, but mostly the nights he took it, he slept very well. Not only was that a huge relief for him, but for me as well because I would be up-and-down with him when he couldn't sleep---so we were both exhausted. The Clonazepam made him feel less anxiety about nighttime approaching. So, you might ask your doctor about this medication. Here's more information about it:
http://www.mentalhealth.com/drug/p30-r04.html Christine