I am going to take Gary's advice and seek out City of Hope and gather her records together to present to another doctor. I am very confident with her Oncologist and she has a really good dentist. I talked to Stephanie when my mom had her recurrance (both our mothers had their recurrances around the same time) and asked who her moms doctor was and it was ironic that she had the same doctor as my mom. I agree that she would not have had to go through all this (second surgury, skin graph etc) if they had done the radiation from the beginning. Being that my mom had recurrances of luekeplakia for 10 years her ENT should have known her track record for recurrance. The more I learn the more I want her to get a second opinion.

But on a happier note my mom is doing really good. Shes almost off the pain meds and really starting to be able to eat most soft foods. Thats a relief. Everyday she feels a little better. Shes just really tired but I keep telling that will go away with time....

Danielle