 Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hi Christine,
These times are a bit difficult. I do not recall what options you have for more opinions but I strongly recommend you getting to a large medical center with a tumor board. A tumor board is a larger group of specialists that will review Scott's case and come up with a plan based upon a large base of knowledge. Brian Hill or some others may be able to direct you. It is possible that the doctors you are working with now are at the limit of their experience level. I don't get the feeling you will get a timely (IMPORTANT) resolution with the doctors you are working with. Seek experience and quality now!
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
| 
