Hang in there SusanLaura - there will be tolerable days ahead. Be sure to let them know about your pain levels so they can adequately medicate you. The further away you get from chemo the better you will feel also. I can't comment on Amofostine since I had IMRT and didn't need it.

The PEG tube won't stop the nausea. Zofran is only effective for the first 72 hours then you must switch to another anti-emetic. I ended up using Compazine suppositories because I couldn't keep anything down (sometimes I inserted an Ativan into the suppository also - I also was nauseated by the taste of Ativan when taken sublinglily).

I lost over 60 lbs myself - most of it related to reaction to the Cisplatin. Thank God I only had 2 treatments!

Constipation can also cause nausea and the same symptoms so be sure to keep a close eye on that.

Your experience sounds a lot like mine but I am 110 days out now and feeling pretty good, food tastes good and I have a good appetite -you'll get there!

Tip: If you need rehydration have infusion do it rather than emergency -there's about a 4 hour time difference!


Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)