 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I noticed in the obituary that the family requested donations in leui of flowers but requested they be sent to the cancer support group of their church. I will see him at the funeral services but still don't know how to bring up the subject. I get the impression that he does not know much about the site. I am planning on getting all of her posts and private messages to me, compiling them as a diary in chronological order and presenting the collection to Lynn's husband and daughters so they can know the gift she provided to many of us here. I hope the girls can look back years from now and understand how their mother found a way to give back so much as she battled this disease.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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