 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danny Boy and Rosie,
You bring up such a good point and I have been mulling over in my mind whether to broach the subject with Lynn's husband. He did ask me to let everyone know the news (unfortunately, after I had already posted) and he mentioned how much the site meant to her but do you think it is too pushy to suggest donations to OCF in her honor? It would really be cool to show the JK PSA at her service. I was planning on asking him if he would like to come to Las Vegas and also if he would like to provide a family picture for Las Vegas. I don't mind being pushy to get the word out, but I don't want to be offensive. I know Lynn would be smiling down knowing we were all doting over her.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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