Liz,

I know that this is haunting you and I am so sorry. I live every day with the worry that we aren't doing enough or making the right treatment decisions. I can't imagine, when you have a negative outcome like Robins, what your demons are, but I say a little prayer that you can find peace at some level.

I do know that you can fight this with what you are doing...posting your experiences will help us all make better decision and be more militant in our quest for a cure. You can only do what you know to do. When you gain knowledge, you gain power!

Sending you a hug today, Deb

Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill