I often wondered why after his treatment had finished that all Robin had in the way of follow up was a cursuory physical exam by the head and neck clinic ,that consisited of physical examination of his neck scar,four weeks later.
This was then followed by another four week check up lasting a few minutes and ending with the words " so far so good"
The thought that all that time the tumour in his jaw and mouth was still growing at an alarming rate and had not been eradicated by the aggressive radiation treatment is horrifying.but how would they know without scans or x- rays?These were not even considered an option until after the tumour had burst through his face by which time it wasnt necessary as you could see the damn thing with the naked eye.
Too late.

Surely a false positive or a few days worry about inconclusive results is better than blissful ignorance and then the devestation of terminal recurrance that has been overlooked or just plain missed.


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.