 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hi Cas,
Welcome to our community. Sort of like the good news/bad news of life. Good news you have found a place where your questions will be answered or directed towards an answer with your friend's health care needs. Bad news because you had to find such a place. Your friend is so fortunate to have such a friend, indeed. I can feel your compassion and love through your concern.
Everyone else has already given you great direction but I want to add that this journey will also take it's toll on you, too. Be sure and take some time for yourself whenever you can. Keeping recharged will help your friend immensely, not to mention what the lack of it will do to you. We all appreciate the important role you are taking on. Hats off to you for being there. We are all here for you when you need it. May God continue to bless you and your friend.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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