 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Erik,
Congratulations on yet another milestone...PEG day, if you will! I was so hungry when they took mine out and it was lunch time when I left. I suddenly realized I forgot to ask when I should eat. My wife called the nurse and called me back and said no delays or restrictions. I immediately pulled over and got some fried chicken (one of my favs). It still felt a little odd and I was wondering if the chicken was oozing all over the inside of my abdominal cavity. Yes, it was amazing.
I got a lot of sores and blisters about that time that cultured out to be thrush. I don't know if that is your case but it took a while for my oral area to realize there wasn't any more saliva coming. I also noticed sometimes it was brown and on the tongue.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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