 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Penelope,
I would think you would follow all the same schedule as anyone with SCC. Have you not had any tests since surgery, i.e. PET/CT, CT with contrast, etc.?
Minimum, I think would be an annual chest x-ray and regular follow ups but I am not sure in the case of only a tumor in the base of your skull. Did you have radiation as well? The term "invasive" implies to me that you should have had quite a few diagnostic tests, comprehensive treatment and thorough follow up.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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