Contributing Member (25+ posts) Joined: Apr 2004 Posts: 44 | Tiffany-
Welcome to the neighborhood! I'm a surviving caregiver and can't help but fret until our survivors are "out of the woods". Forgive me if I sound like a mom.
Have you had any specific treatment for your ITP? Do you have acute or chronic? When was the last time you saw your hematologist? I only ask because in some cases doctors recommend spleenectomy to treat ITP (and it appears quite successfully in many cases). My sister had a spleenectomy (not because of the disorder) but was concerned about her body's ability to fight infection and the doctor mentioned spleenectomy is actually a viable treatment for this rare condition.
Be sure you follow up with your hematologist (he/she should be keeping close tabs on your treatment/status for the ITP) as well as the ENT. Because of the complications and possibility of recurrent bouts with ITP (or TTP) you want to be sure you cut off any advancement/future flare ups. Be sure you take care of you so you can take care of your little one.
Keep us posted. I will send good thoughts and prayers your way.
Susan
Caregiver to Uptown/Ed, SCC Stage IV, Base of tongue - Completed Chemo (Cisplatnin/5FU) and 45 days' simultaneous Radiation 10/08/03
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