Leena,

My heart aches for you! When I read stories like yours, stories like Job, etc., I am humbled by your resolve and deeply saddened that another person has to endure so much. I am praying for His comfort and peace for you, I am praying for wisdom and guidance for your medical team to find the best possible treatment for you and I am praying for Him to hold your entire family in his loving and healing arms.

I almost forgot to mention the final result form my medical oncologist. I emailed him on Monday afternoon and told him I would make it easier for him to communicate and gave him three possible outcomes. I instructed him to reply with #1, #2, or #3. It turned out to be number 1, I requested a recheck on my viral loading for Hep C and they ordered the wrong test and he was calling back to notify me I had Hep C which was already documented in my file. (I had actually finished the Hep C treatment back in Nov 2002 and want reassurance it has not rekindled from all the chemo/radiation.) Thank you for asking and I am sorry for not responding sooner.

God Bless,

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023