Leena,

I am sorry to hear yet another event gets to stimulate your already edgy fears of cancer. It may just be me but it seems like as soon as life starts flowing in a reasonably normal manner, something pops up on the radar screen to generate a little extra tossing and turning instead of sleeping at night.

For instance, I came in from outside Friday afternoon (2:30 pm) and noticed my medical oncologist left me a message. I have not seen him for 3 months and he said he wanted to speak with me regarding some recent studies I had done and that we needed to talk about what we should do from here. I called back and they said do not move from your phone, he will call you as soon as we page him. At 5:01 pm I called back and the switchboard was closed for the weekend so I asked the doctor on call to return my call. He said he could not help me and to check back on Monday. Do these folks understand how they have impacted my weekend??? mad It does not seem like a very nice and compassionate thing to do.

Anyway, I will be hoping and praying you have nothing of concern!

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023