 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Karen,
When my mother was battling ovarian cancer, we set up home health care. They provided an aide to help her bathe, clean up her living area, massage her feet with lotion, sing to her, cheer her up...
The schedule was pretty much up to my mother and she chose to have this person come in twice a week. We also had a nurse once per week on a different day. The nurse even sent in a physical therapist once a week to keep the legs limber and to deal with any muscular or skeletal issues.
Hang in there.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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