Hi Erik,

Wow! I'm impressed and perhaps a little jealous that you're eating now so close from finishing treatments! I had a total glossectomy a year ago TODAY (yes, TODAY!) and I only started eating "real" food last month. I know about the constant battle of getting the food down and what use to be such an enjoyable, every day task is now sometimes a chore. But even though it's only been a month for me, I find that I'm eating just about anything I want except for things like cheetos, bread and other "dry" foods. I admit that I drink a LOT of water with eat swallow but even that is coming down in volume. I'm still experimenting with what works best, what slides down best and what has at least some sense of flavor. Some things still taste like cardboard, but even that is getting better. I haven't been brave enough to eat in front of anybody (don't want to gross them out in case I gag, choke or bring it back up) and still stay close to the kitchen sink when I'm eating "just in case." Hang in there Erik - you're doing a great job and hopefully with time, practice, and patience it will get better for both of us.

I'll be thinking of you while I eat my dinner tonight!

Nancy


Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03