 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Rick,
I am sorry to hear about your mother. I can imagine after that, you have a sense of fear with the sore in your mouth. Try to just keep calm and watch it for a few days. I had cancer of the tongue and I get really scared when something feels strange on my tongue. The doctor keeps telling me to quit that because with all the radiation I had, my tongue will never feel the same. It doesn't help to hear that, though. My wife gets sores on her tongue that she calls swollen taste buds. They look very strange and worry me but they go away in a day or two. The key is the sores that don't go away for weeks.
Take care and try not to worry.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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