Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | What kind of neck gear, if any, have they given your father to wear? Besides the TEP sticking closed, I find the hands-free valves impossible to use, but haven't given the latest one a good chance. I order supplies from both ATOS and Inhealth. I use the ATOS HIFLOW value which means you need to use one hand to close value. They also make an adhesive that can be used on sensitive skin. Expensive but I was able to use it after about 3 weeks. If too soon for that, Inhealth has foam stoma covers which help keep things moist. Inhealth also makes a very good shower value ($15) that comes with a plate and adhesives. Let me know if you need details on these. Both have web sites but I call in orders. Supplies ae covered by insurance. There are otehr suppliers, I just don't know the names off the top of my head.
I did my cuperating at the Jersey shore so had lots of humidity. Get a humidifier and a humidistat(Bed,Bath &B) to keep air moist if not near water.
For some strange reason, after having becoming a total laryngectomee, I was terrifed of everything. Fearful, that I would stop breathing and not be able to talk to tell someone I needed help. I bought a big bell so I could call my husband if he was out of earshot or I couldn't talk. It took about 8 weeks before I was willing to let my husband out of my sight. I outgrew most if it but it took a crisis this year to get me on airplane by myself again. So he may be experiencing some of this. Losing your ability to communicate is very frightening and frustrating. Showering is a whole new experience. Also realize that he probaly can't smell at all. I can still smell some, but am a real danger in the kitchen.
Let me know if you need anything else.
Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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