 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Kim,
I even know for sure I had cancer and I know for sure as of the last PET scan, MRI, etc., that I didn't have detectable cancer and I am still terrified waiting to meet with the doctors! My heart goes from pitter pat to THUMPITY THUMP as soon as I just walk in the door. I spent the fifteen minutes in the waiting room talking to a gentleman that was obviously scared to death and I noticed he was waiting to see my doctor. I tried to calm him a bit and gave him my number just in case he got bad news. It even hurts to see a stranger potentially going through this. I have given my name and phone number to everyone that treated me and told them to feel free to call or give my number any time.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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