Christine,
You were asking where to go and have received excellent feedback on this discussion thread. I am a patient at Johns Hopkins and live in Baltimore. You are welcome to stay at my house should you decide to come to Hopkins and want somewhere to stay.
As others may have mentioned the top-three ranked cancer centers in the US according to US News & World Report are in descending order MD Anderson in Houston, Sloan Kettering in NYC, and Hopkins in Baltimore. As already noted Hopkins has a top ranked ENT department too. While one of the parameters to consider in a place to go for care is the reputation of the institution, another consideration is the reputation of particular doctors that you see. The ENT specialist treating me is Dr. Cummings and the radiation oncologist is Dr. Lee, and I recommend them. I found a clinical trial at
http://www.clinicaltrials.gov/ct/show/NCT00006248?order=19 entitled "Combination Chemotherapy in Treating Patients With Metastatic or Recurrent Head and Neck Cancer". I am not expert in interpreting clinical trials' solicitations, but your husband might be eligible and some facilities participating in this trial are near your residence.
In addition to addressing your husband's treatment, please also take care of yourself. I took my 5 and 7 year old children to sessions for children of cancer patients at Hopewell Cancer Support (
http://www.hopewellcancersupport.org/) in Baltimore and found that helpful. Perhaps a family support center is near you. This Tuesday Hopkins hosts a head and neck cancer patient discussion group.
I hope that you and Scott have the best possible outcome.
Yours,
Roy