 Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Hi Christine,
In my opinion, for what it's worth, it sounds like you have done all of the right things. If I were in your shoes, I would taken the same path. I can understand why you have confidence in your current medical team and I would stay with them.
I would discuss the possibility of having Kimmel (Johns Hopkins) review the case just to be sure that all aspects have been examined. There is always the possibility of having access to a clinical trial and more treatment options.
I will keep you and Scott in my prayers.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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