Can anyone give me information about Proliferative Verrucous Leukoplakia? My husband was just diagnosed with this after a biopsy. Oral surgeon says it's a rare disease that causes precancer cells that turn into cancer left untreated which is probably what he had on his tongue before it turned into cancer???

Brian, any info?
Can't find anything out there and desperate to hear asap.
Thanks,
Debbie

Debbie/Caregiver/wife of Dan, diagosed with SCC tongue, Stage II/III, 1/3 tongue removal, lymph node dissection both sides of neck, skin graph 7/30/03. Left tumor found - radical left neck dissection 12/24/03. Could not get all of tumor/wrapped around carotid artery and in wall of jugular. 1/12/04 beginning of 6 doses of Taxol/Cistoplatin once a week, and rad 70 gray 5 days a week/6 weeks.