I know exactly what you're going thru, Desiree', and believe me, it's not fun to be confused, frustrated, cut off, and genrerally dehumanized by this whole medical system. Being responded to in a "brush-off" manner can ruin my whole day....

I'M STHENSITIVE!!! laugh

I had that same "sore throat" and intermittent ear pain since about Sep of last year and stupidly didn't recognize it for what it was- although I joked that it HAD to be cancer...after all, if karma is true, I really WAS Hitler in my past life!!!! laugh

I completely agree with what Joanna just expressed- please don't let NONimformation be your guide. Your doctor has decided to wait for confirmed results before giving you a diagnosis. This is completely rational and to be expected in a superlative doctor, but I find it useful to remind myself that the doc is only there to advise, not to be the final decision-maker. (Left to myself, I think I tend to multiply everythng that occurs (good and bad) by 5.) I feel a need to find out the information necessary to at least be able to ask informed questions.
After all, YOU have to sign that wonderful consent form after all.

I have been "put off" and delayed for about 2 1/2 months since I was first diagnosed and am to FINALLY begin clinical trial (chemo) on Mon 28Apr. This will be a long weekend for the both of us, don'cha think? I have repeatedly asked docs/nurses/techs that they tell me what to expect in a given treatment so as to limit the "surprize" factor in all this, but have found this is difficult for some....they deal with it EVERY day and I've never had cancer before. Found out YESTERDAY that this is a continuous drip trial and I must be hospitalized for the duration. (4 days) I am so anxious to begin treatment that I'm setting aside EVERYTHING to accomodate, and I feel that my caregivers-paid and unpaid must respect my need to KNOW what the heck is happening!!!!! Why should our requests for information be viewed as excessive????!!!!!! Maybe it's NOT.

You'll be okay, regardless!!!!
gordon


SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!