Hi Lyn,
Jerry sent me an e-mail to let me know that there was someone else from Melbourne on the board. I'm really sorry that you have had to join us ....but welcome!! While my experience has been somewhat different to yours - I have had one tongue cancer and one alveolar ridge (behind a molar) - which were both caught early and completely excised. I haven't had to have radiation or lymph nodes removed, so I can't offer any advice there. I have to say that I have been very lucky! I was first diagnosed in March of this year after having had an ulcer on the side of my tongue for somewhere between 8 and 12 months. Since I have always suffered from ulcers I wasn't overly concerned about it and was very slow getting to the Doctors. If I had known then what I know now I would have done something much, much sooner! I live down south in Mordialloc. Where abouts in Melbourne are you? I'll send a private e-mail tomorrow. Stay positive!

Sue


55 y/o
SCC LL Tongue 3/27/07
Part. mandibulectomy 9/2/07
Left ND 5/12/08
RT/Chemo
Rec LL Tongue 07/09
Part gloss 8/5 & 8/25
Surg 10/28/09 re mets to R neck & L jaw
RT & Chemo finished 12/22/09
PEG fitted 05/06/10
L buccal SCC 10/10
freeflap (forearm)surgery 2/28/11 L buccal and gingiva