Hi Donna,
The best thing you can do now is be very aggessive in getting whatever tests you can get done NOW. The longer you wait, the worse off things can become. Act as if your life depends on the moves you make right now, because, unfortunatley, they do. Be pushy if need be, don't be shy.
One thing I found out is that the larger the lymph nodes becomes, it is more likely two detrimental things can happen--the cancer can spread to other lymph nodes, and it can penetrate the lining of the lymph node (extracapsular spread--both of these these will result in a higher staging, thereby increasing the treatment regimen.
I was polite and watched my lymph node grow from the size of a pea to walnut size--the staging increased with the lymph node size.
I wish you the best and hope all of your tests come back negative!
Oscar