Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | My son did not get the PEG tube either and his tastes changed almost every day. I found out that when starting something new it was best not to buy too much of it because his taste for something he used to tolerate or like the day before could change drastically. He did get upset when I tried to urge him to eat and informed me in his "you just don't understand" voice that anything he tried to swallow felt like sharp knives stabbing him in his throat. For a while, he liked the creamy rice pudding, then yogurt, and he went from liking chocolate milk shakes to hating them and then strawberry milk and vanilla shakes to no shakes at all. He ate softly scrambled eggs for a while and lots of chicken broth and eventually ate some of the noodles in the broth, too! It's as Dragon says, you just have to do the trial and error thing. It was very difficult to know when to be firm and when to be soft with him. And sometimes all you can do, is give him a gentle (very gentle because his surgery area may be tender) hug or pat on the hand to let him know you love him. Stay in touch with us and let us know what's happening.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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